The avoidance of worry #fibro

I never want or will be accused to being a hypochondriac. The unfortunate truth is that the ailments I figured I have were proven to be had. I am a very smart, intelligent woman who looks at medical stuff rather objectively. I list my symptoms and look at them globally and individually to figure out what the hell is going on with me. The fibro was one of those recent "yup, that's it" that occured last year. Now there are symptoms that have me on the alert again to figure out what is going on. The symptoms don't fit with fibro (but could knowing how fibro can be quite different person to person). The one symptom that set me off to figuring out things again that doesn't necessarily fit with the fibro are vision problems. I have sight in one eye only, so when something funky is happening with my vision, I get a tad worried. Aside from the two occassions of losing part of my sight for a few hours and seeing the squiggly lines/floaters in my sight every now and then, now there's been more blurriness than ever. Is it migraines? Well, the blurriness and vision loss have occurred without headaches... which confused me when I was told I had an ocular migraine but I didn't get the migraine part. The pain in my legs is only getting worse. I get nasty pain through my back which has been lessened with physio exercises (thank goodness!). It is frustrating to me when my legs hurt so much that I can hardly walk. I have worked from home for that very reason, that I knew I wouldn't be able to walk back to work without being in serious pain. The fatigue, general malaise, endometriosis, IBS, generalized pains, chemical sensitivity, etc is all fibro. That I do know. I do not discount that diagnosis. I just think there might be something else going on. There are other items as well, but these are the major concerns. The more I read on about MS, the more I go "yup". Like the cold intolerance. Cold intolerance can be a thyroid issue (no issues with my thyroid) but it fits with MS. I could go on like this with other symptoms... I know each individual element can be signs of many different illnesses but when they are all added up together, a grim picture can be seen. So, I have made the first step and saw my family doc who got me in to see the neurologist within two weeks. I just hope the neuro believes me and does the appropriate tests. Whichever way the tests come back means moving forward. Be it that I do have it and can start treatment to avoid degeneration or I can discount it and move on to figure out the individual elements.  I just went through all of this a year ago. But, I have some hope that the doctors will listen. It is sad in a way that I am more worried about the neurologist taking me seriously than the actual diagnosis. When I saw this neurologist 10 years ago for migraines, he didn't seem to believe my migraines... so that history doesn't really help here. I'm worried that it will take 6 months or more to figure it out. I know tests take time and I am willing to wait the necessary time but, I would like some relief, some hope.

After a busy month

It feels like forever since I wrote my last blog post. I am currently trying to look through my cat while I work from home for the afternoon (curse light sensitivity along with a mild flare). Thankfully, I have a very understanding supervisor. My goal is to work. If I can work from home and be productive when I know I am at my end and would not be productive in my office, then so be it from time to time. This is the second time I have done this since September. It was after a couple taxing weeks (I'll get to that in a minute), I was going home for lunch and had no strength left in my legs and hurt a lot, so I asked to work from home because it would have been excruciating to walk back to work and home again. I am not after for this to become a regular occurrence but I am damn glad to be to able to from time to time. I may not be physically able sometimes and the fluorescent lights and smells make it impossible to concentrate but I am very resourceful and will always find a way.

September was extremely busy; I did a total of 12 class presentations and 4 individual information sessions. It was crazy, taxing, and wonderful. I enjoyed being that busy and kept it together most of that entire time, only needed that afternoon I worked from home. Then of course it all caught up me into the third week of October when I went into a flare/fought off a cold after being bombarded with perfume overload. My fibro flares like crazy when I am exposed to nasty perfume. I was done for.. I was out of commission for four days. It seems to be once a month, I need to take a day just to get away from the overload. I love my job though, so at least I don't feel terribly stressed when it comes to the work involved.  :)